pegkerr: (Default)
Rob isn't yet in remission so has received more chemo. New issue now, too. Read more at CaringBridge here.

Peg is still looking for someone local who can store Rob's car for the winter. Can anyone help? Her contact info is on the CaringBridge post.
pegkerr: (Default)
Rob has been back in the hospital again.

We had family pictures taken last week by the highly talented John Walsh. Good thing, too: Rob's hair started to fall out today from the Decitabine chemotherapy, and so he shaved it off today. Click here to see Rob's new look and to learn about the PET scan.
pegkerr: (Default)
Everything has changed. Again. See CaringBridge post here.
pegkerr: (Deep roots are not reached by the frost)
Rob is going to be in the hospital for the next two months.

We are now going for bone marrow transplant.

Read more at our CaringBridge post here.
pegkerr: (Rob)
Here's an account of the past two weeks, as well as a request for help: Rob has a series of appointments at the U of MN three times a week (M, W, F afternoons) and we're trying to schedule volunteers to drive him so Peg can return to work.

Read more at the CaringBridge post here.
pegkerr: (candle)
Everything has changed, and we are in all new territory. The clinical trial is off. Click here to find out why.

We are trying to be brave. It is difficult.
pegkerr: (Deep roots are not reached by the frost)
Rob is not doing well. And we have had more bad news: cancer has now reached Rob's bone marrow.

Read more at CaringBridge here.
pegkerr: (candle)
We had a PET scan report today, and it wasn't good. Rob's remission lasted five months, about as long as the one he had two years ago did.

Read more at CaringBridge here.
pegkerr: (Both the sweet and the bitter)
New CaringBridge post: Rob has had two more clean PET scans. Yay!

Unfortunately, we have had a new complication. As a direct effect of the treatment he has been undergoing, Rob has now developed diabetes. Read more at CaringBridge here.
pegkerr: (Glory and Trumpets)
Rob has achieved COMPLETE REMISSION!

And I have been offered a JOB! I will be working for the Minneapolis ELCA Synod (the local governing body of the Lutheran Church). I will be, among other things, assisting with the administration of the process to call new pastors to Lutheran Church.

Details at CaringBridge here.

This has been the best week, like, ever.
pegkerr: (Default)
Rob's PET scan yesterday was good enough to allow him to continue with his clinical trial. See the details at his CaringBridge.
pegkerr: (Deal with it and keep walking)
If you've forgotten your CaringBridge password and so you're not reading these posts, hey, you can get CaringBridge to send you a new one.

Rob's cancer has progressed further and is now is found in the ulcers in his stomach. Since it has been proven by biopsy that he has "progressed," he's being taken off the study he's been on for the past 14 weeks and will be placed on a different one. It means we'll be spending much more time in Rochester, which, no offense, is a very nice city. But...we'll be spending a lot more time in Rochester. Thank you, Kyle and Mary, for putting us up.

CaringBridge post.
pegkerr: (Default)
These were taken by a friend, John Walsh, who is a professional photographer. Thanks for doing such a great shoot with us, John!

Peg and Rob 30th Anniversary - John Walsh Photographer

We haven't had a nice professional photo taken of Rob in, like, forever:

Rob - 30th Anniversary Shoot - John Walsh photographer

And here it is! The famous Tunnel Through Time, taken every decade, now in its fourth iteration.

30th Anniversary Tunnel Through Time picture

And I'm adding this one, which is all about how hard this year has been )
pegkerr: (Default)
We finally caught up with Rob's oncologist who interpreted the PET scan from two weeks ago for us. Rob has put on a waiting list for a new clinical study. He may get called to go in for tests sometime in the next 2-8 weeks. He would be a good candidate, but he may be ineligible because of his participation in an earlier study. Read more at our CaringBridge post.
pegkerr: (Deal with it and keep walking)
It's all summed up in the first line of the report: "Mixed changes with however worsening of lymphoma."

Read the rest at the CaringBridge post here.
pegkerr: (Default)
PET scan: liver glow GONE. Spleen glow GONE. Central glow deep in the abdomen (this is the one that really worried the doctor last time) GONE. Neck glow GONE. Slight glimmer on back of head remains, but no bigger than last time. New slight glimmer at tip of stomach: may be simply inflammation. Blood work looks perfect.

Our doctor said, "This is an enormous response. Marked improvement. Everyone's happy. Take the weekend to celebrate."

So...yeah. Thanks to Mayo! Thanks to our doctor. Rob's not ENTIRELY in remission, but he's pretty damn close. Which is absolutely amazing!

(I sent the girls Snapchats all day about "Our Day at Mayo" and took screen shots of most of them).

Our Day at Mayo )
pegkerr: (I told no lies and of the truth all I co)
The flu put me badly behind, but I'm not quite so far behind now.

Week 31: Minicon
We're there every year!

Week 31 Minicon.jpg

The challenge that [livejournal.com profile] minnehaha K. gave me was that the Minicon card had to be made entirely with materials found at Minicon. The image in the lower left was cannibalized from the business card of the Artist Guest of Honor. I used bookmarks left on the freebie table, promotional postcards, bits from the Bozo Bus Tribune, etc. I like this card.

Week 32: EverTwixt
EverTwixt awaits you if you dare.

Week 32 EverTwixt.jpg

As part of my attempt to switch career fields, I started a marketing internship with an old friend, a writer I met at Clarion almost thirty years ago, Kelly McClymer, who is attempting to start a new website, EverTwixt.com.

Week 33: PhotoShop
It's great fun, but an amazing time-sink.

Week 33 PhotoShop.jpg

Also as part of my training, I've started learning PhotoShop. This was an attempt to make a graphic that could be used as part of the EverTwixt site: one of the stories available for download, "Maiden Ash" is a variant of Cinderella, and this image is suggestive of the moment when the stepmother scatters ivory beads and jewels in the straw and tells the heroine to pick them all out into separate piles if she wants to go to the ball. Of course, in PhotoShop, I was doing the exact opposite: painstakingly assembling the layers: straw, then jewels and beads. When I made the card, I cheated and embellished the beads with some glimmering paint [livejournal.com profile] minnehaha K.had hanging around.

Week 34: Shadow
"There are three shadows on the liver in your CAT scan, and two on the spleen."

Week 34 Shadow.jpg

This is what the doctor said when he came in to our meeting that week. (For details, you can see our CaringBridge). This is not an actual diagnostic image taken of Rob, but a graphic I found online, highlighting the liver. I added the shadows on it with PhotoShop.
pegkerr: (Deal with it and keep walking)
Rob and I just came back from Rochester. We have a mixed report. New spots on his liver and spleen. Are they tumors or inflammation? We don't know. The one deep in his body is probably a tumor, as it's right at the site of the tumor that started it all, which had apparently been eliminated by radiation in early 2015. One glowy bit from the last PET scan is gone. The doctor has decided the best thing is just to stay the course for now.

Read the rest on our CaringBridge post here.

I am so goddamned tired of all the uncertainty.
pegkerr: (Default)
We are back from a two day stay at Mayo. The latest PET scan and biopsy gave us good news, and we've learned some more about how truly fortunate Rob has been. You may read more at the CaringBridge link here.
pegkerr: (Both the sweet and the bitter)
Rob had another PET scan yesterday. The results were ... inconclusive. Difficult to interpret. His immunatherapy clinical trial continues. Read more at our CaringBridge account here.

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