pegkerr: (Rob)
Rob passed away peacefully this morning at 9:15 a.m. in the presence of his family.

We will announce the details for his upcoming memorial service on his CaringBridge when we have them settled. Click here to read more.
pegkerr: (candle)
Another setback.

Read more at CaringBridge here.
pegkerr: (Default)
Rob has been back in the hospital again.

We had family pictures taken last week by the highly talented John Walsh. Good thing, too: Rob's hair started to fall out today from the Decitabine chemotherapy, and so he shaved it off today. Click here to see Rob's new look and to learn about the PET scan.
pegkerr: (Rob)
Here's an account of the past two weeks, as well as a request for help: Rob has a series of appointments at the U of MN three times a week (M, W, F afternoons) and we're trying to schedule volunteers to drive him so Peg can return to work.

Read more at the CaringBridge post here.
pegkerr: (candle)
Everything has changed, and we are in all new territory. The clinical trial is off. Click here to find out why.

We are trying to be brave. It is difficult.
pegkerr: (Deep roots are not reached by the frost)
Rob is not doing well. And we have had more bad news: cancer has now reached Rob's bone marrow.

Read more at CaringBridge here.
pegkerr: (candle)
We had a PET scan report today, and it wasn't good. Rob's remission lasted five months, about as long as the one he had two years ago did.

Read more at CaringBridge here.
pegkerr: (Both the sweet and the bitter)
New CaringBridge post: Rob has had two more clean PET scans. Yay!

Unfortunately, we have had a new complication. As a direct effect of the treatment he has been undergoing, Rob has now developed diabetes. Read more at CaringBridge here.
pegkerr: (Default)
Rob's PET scan yesterday was good enough to allow him to continue with his clinical trial. See the details at his CaringBridge.
pegkerr: (Deal with it and keep walking)
If you've forgotten your CaringBridge password and so you're not reading these posts, hey, you can get CaringBridge to send you a new one.

Rob's cancer has progressed further and is now is found in the ulcers in his stomach. Since it has been proven by biopsy that he has "progressed," he's being taken off the study he's been on for the past 14 weeks and will be placed on a different one. It means we'll be spending much more time in Rochester, which, no offense, is a very nice city. But...we'll be spending a lot more time in Rochester. Thank you, Kyle and Mary, for putting us up.

CaringBridge post.
pegkerr: (Default)
We finally caught up with Rob's oncologist who interpreted the PET scan from two weeks ago for us. Rob has put on a waiting list for a new clinical study. He may get called to go in for tests sometime in the next 2-8 weeks. He would be a good candidate, but he may be ineligible because of his participation in an earlier study. Read more at our CaringBridge post.
pegkerr: (Deal with it and keep walking)
It's all summed up in the first line of the report: "Mixed changes with however worsening of lymphoma."

Read the rest at the CaringBridge post here.
pegkerr: (Deal with it and keep walking)
Rob and I just came back from Rochester. We have a mixed report. New spots on his liver and spleen. Are they tumors or inflammation? We don't know. The one deep in his body is probably a tumor, as it's right at the site of the tumor that started it all, which had apparently been eliminated by radiation in early 2015. One glowy bit from the last PET scan is gone. The doctor has decided the best thing is just to stay the course for now.

Read the rest on our CaringBridge post here.

I am so goddamned tired of all the uncertainty.
pegkerr: (Default)
We are back from a two day stay at Mayo. The latest PET scan and biopsy gave us good news, and we've learned some more about how truly fortunate Rob has been. You may read more at the CaringBridge link here.
pegkerr: (Deal with it and keep walking)
Rob's last PET scan was suspicious, and the most recent one, taken this month, was worse. Our doctors did a biopsy, and we received the results today. Rob's cancer has indeed come out of remission, although at least it hasn't reached his bones yet. He is starting an immunatherapy trial at Mayo Clinic next week. Read the details here at our CaringBridge site.

We had waited until tonight to share the news with the girls that the last PET scan was bad because we wanted them to get through their finals first. Finals are over, however, and they have both been told.
pegkerr: (Deal with it and keep walking)
We've had two trips to Mayo in the past two weeks and have received both good news and inconclusive news. Good news: surgical site (Athena's old quarters) is healing, and PET scans show old cancer sites are dark. Inconclusive news: there are some new glowing areas on the PET scan in his neck area...but we aren't sure whether it's cancer or not. Read further on our CaringBridge report (see link).

Read the post at our CaringBridge here.
pegkerr: (Deal with it and keep walking)
I've posted a link to CaringBridge, ominously titled, "Really, it's not been a great month (or) Dagnabbit, Athena."

Rob's head tumor seems to have made a reappearance. We went to Mayo where it was surgically removed today. Click here to read further at Rob's CaringBridge journal.
pegkerr: (Glory and Trumpets)
Had a follow up visit at Mayo today. Today's PET scan was perfectly clean, and the surgical wound is so well healed that we don't need to dress it or cover it any more. The total remission continues to hold strong. Yay! Only disappointment is that the genetic report on the tumor still isn't ready (way overdue). Next follow up is in November.

Read the rest at our CaringBridge here.
pegkerr: (Default)
We have been back twice to Mayo to follow up with Rob's surgeon. His wound is healing well, but more importantly, the biopsy results indicate his lymphoma has been completely routed from his body. For the first time in two years, apparently, Rob is completely cancer-free. YAY!

Read more details at our CaringBridge post here.
pegkerr: (Deal with it and keep walking)
The tumor on his head has shrunk to skin level. Rob's heart is slowly improving. Next step will be testing/PET scan in Rochester on March 17.

See more at the CaringBridge post here.

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January 2019

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