pegkerr: (It is not to be borne)
[personal profile] pegkerr
The doctor tested her for mono (again) and strep (again). Delia wept as we waited for the test results, both because it seemed so unfair to have to produce blood for another test (fortunately it was just a finger stick this time, but it was still traumatic) and because she's just tired of it all. "I want something to come out positive," she moaned. "Then they could give me some medicine and I could get better."

Both tests came back negative (again). He told me to take her to see an infectious disease specialist, because he was out of ideas. I managed to wangle an appointment with one for tomorrow morning at 9:00 a.m.

Delia's fever is now a little over 100. She is asleep in bed.

If Rob manages to break away from the store as planned, I'll be going into work soon.

Edited to add: She just woke up. 103.0 F.

(no subject)

Date: 2004-08-25 11:21 am (UTC)
From: [identity profile] folk.livejournal.com
I feel for you all in this ongoing saga, and hope they figure out what to goodness it is very, very soon.

(no subject)

Date: 2004-08-25 11:22 am (UTC)
From: [identity profile] aome.livejournal.com
You guys must all be tired of this. My thoughts are with you.

(no subject)

Date: 2004-08-25 11:24 am (UTC)
From: [identity profile] charlietudor.livejournal.com
Oh, dear. I've been reading this with worry--poor Delia. I hope that these guys find something that can be treated. I'll be sending good thoughts in the morning for you both.

(no subject)

Date: 2004-08-25 11:30 am (UTC)
From: [identity profile] sociofemme.livejournal.com
I'm guessing you've ruled out meningitis?

Not being a doctor, I can only send you both my best wishes. Would Delia like a note or something in the mail to help cheer her up? Email me at LJ if you'd like. :)

(no subject)

Date: 2004-08-25 11:57 am (UTC)
From: [identity profile] dustybinx.livejournal.com
I'll jump on the bandwagon to send a get well card, if you think it would cheer her up.

(no subject)

Date: 2004-08-25 12:47 pm (UTC)
From: [identity profile] mizkit.livejournal.com
Me three. Poor sweetheart. Poor Peg and Rob, too. Poor family. :/

(no subject)

Date: 2004-08-25 03:51 pm (UTC)
From: [identity profile] pegkerr.livejournal.com
I've posted an address where people can send cards if they like, here. Thanks!

(no subject)

Date: 2004-08-25 01:01 pm (UTC)
From: [identity profile] pegkerr.livejournal.com
That would be lovely. I am at work now but will e-mail you when I get home. Thanks!

(no subject)

Date: 2004-08-25 03:50 pm (UTC)
From: [identity profile] pegkerr.livejournal.com
I've posted an address where people can send cards here.

(no subject)

Date: 2004-08-25 11:49 am (UTC)
From: [identity profile] baldanders.livejournal.com
This is so awful.

(no subject)

Date: 2004-08-25 12:03 pm (UTC)
From: [identity profile] heavenscalyx.livejournal.com
Gah. This is awful. Many sympathies.

I saw that she's been tested for Lyme, and that you were going to talk to the doctor about Rocky Mountain Spotted Fever. Have they thought about testing for other Borrelia bugs than Lyme, like the one that causes relapsing fever? Or, perhaps, the other Rickettsia bugs related to RMSF (such as murine typhus)? (Misia's comment above actually started me down the typhus path of reading, and Delia's rash certainly sounds like the kind of rash that goes with it.)

Sorry if I'm being annoying with the suggestions. This is the sort of thing for which I immediately run off and start Googling through the NIH website. The perils of medical writing and whatnot.

(no subject)

Date: 2004-08-25 12:26 pm (UTC)
From: [identity profile] copperwise.livejournal.com
Hey, me too. It suddenly hit me that I'd heard of louse born relapsing fevers...they're pretty rare in the States where we have mostly tick borne fevers, but...

Be Koool (sic)

Date: 2004-08-25 12:09 pm (UTC)
From: [identity profile] jonquil.livejournal.com
I have migraines; one thing that helps for comfort is Be Koool pads. They're menthol-soaked gel pads that you stick to the forehead. It's purely palliative, but it might help Delia feel better; migraine raises my body temperature, so the menthol on the forehead feels really good. Another brand is Migraine Ice.

Good luck.

(no subject)

Date: 2004-08-25 12:11 pm (UTC)
From: [identity profile] aynjel.livejournal.com
[ "I want something to come out positive," she moaned. "Then they could give me some medicine and I could get better." ]

Can so relate to this feeling. Sending as many good thoughts as I can your way... for both you, and her.

(no subject)

Date: 2004-08-25 12:23 pm (UTC)
From: [identity profile] porphyrin.livejournal.com
Headed to the U, or over to St. Paul for the ID clinic? I can't remember if there's an ID clinic at Minneapolis Kids...

(no subject)

Date: 2004-08-25 12:34 pm (UTC)
From: [identity profile] pegkerr.livejournal.com
I have an appointment with an infectious disease consultant tomorrow, 9:00 a.m. We were referred by Children's Hospital. The name was (I think?) something like Bilini? She seems to be associated with Park Nicollet, and her offices are at Franklin and Blaisdell.

(no subject)

Date: 2004-08-25 01:13 pm (UTC)
From: [identity profile] porphyrin.livejournal.com
Asking around, I am told she's quite good.

Whether or not she'll be able to come up with an answer-- good reputation or not-- is another question entirely.

Sympathies to you and poor Delia. :(

(no subject)

Date: 2004-08-25 12:31 pm (UTC)
laurel: Picture of Laurel Krahn wearing navy & red buffalo plaid Twins baseball cap (Default)
From: [personal profile] laurel
Scary stuff. I'm praying for Delia and you and Rob.

Stuff I learned from many hours spent in doctor's offices and hospitals over the last couple of years: trust your gut instincts, be persistent, don't assume that the doctors and nurses have all the info together each visit-- doublechecking them & repeating what you've been through so far can make a big difference, don't be shy about throwing out any ideas you have no matter how odd they may seem, it's always better to give the doctors more information (even if it's info you already gave the nurse or gave to other doctors or even the same doctor on a previous visit).

It's probably stuff you already know, but I figured it bore repeating. I guess that's the lesson I learned most of all: to speak up. Sometimes a little thought I had about what might be wrong or some little symptom I noticed that seemed unrelated would end up the key to getting the right diagnosis.

Oh how I wish it were all easier. Here's hoping this specialist is on the ball and can figure it out real quick. (Have they checked for West Nile? I ask 'cuz there've been a lot of cases in South Dakota and we've got fewer mosquitoes here than there are in Minnesota. And fevers have been the most reported symptom).

(no subject)

Date: 2004-08-25 12:47 pm (UTC)
From: [identity profile] boniblithe.livejournal.com
Man, that is so bummy. My daughter would like to send her a card too ... if you wouldn't mind ...

When mine has a fever sometimes we have to do the alternating meds thing as someone was mentioning before - Motrin alternated with Tylenol, every 3 hours. Sometimes it takes them both to bring it down. I don't do it for more than 48 hours because I don't want to blow her poor little liver all to shreds, but, it can really help at least make her comfortable.

I'm keeping you all in my prayers.

(no subject)

Date: 2004-08-25 12:49 pm (UTC)
From: [identity profile] silme.livejournal.com
Poor kid! And poor you and Rob also. I hope some conclusive results are available soon.

(no subject)

Date: 2004-08-25 01:28 pm (UTC)
sraun: portrait (Default)
From: [personal profile] sraun
{condolences}

If you need it, Irene said she might be able to watch Delia some future afternoon? If you want to take advantage, call this evening or later and we can figure out details.

(no subject)

Date: 2004-08-25 01:29 pm (UTC)
From: [identity profile] averagegirl.livejournal.com
This is just so frustrating and worrying to read. I'm with Delia - I want something to come out positive so you at least know what's up. I hope you get some answers soon.

(no subject)

Date: 2004-08-25 01:38 pm (UTC)
From: [identity profile] mangosong.livejournal.com
I'm so sorry for you both. When I was 9, I had tick-borne relapsing fever for an entire summer before anyone figured out what it was. I would be fine for five or six days and then I'd spike a fever again. Doesn't sound like this, but it was awful to be sick all summer and I remember it well.

Hugs to you both.

(no subject)

Date: 2004-08-25 01:42 pm (UTC)
From: [identity profile] jemyl.livejournal.com
Aww I do hope you find out what it is soon. Poor Delia. Poor the rest of the familyh too. Did they check her for scarletina and/or scarlet fever? I know my ideas are really old. So is my experience. Since you were camping recently, you might want to ask about such things as giarrdia and/or other parasites and then just plain old appendicitis, especially if her little tummy is upset. There are just sooooo many things that cause fevers in children, adults too. I keep praying for you and really, really hope that the cause is found soon and that it is something for which there is a simple, quick cure. Hugs to you all.

(no subject)

Date: 2004-08-25 02:03 pm (UTC)
From: [identity profile] mrissa.livejournal.com
I was sick for a month when I was 13, but 13 was old enough to self-entertain most of the time. I hope you find out a good answer soon. Let me know if there's anything I can do.

(no subject)

Date: 2004-08-25 02:15 pm (UTC)
ext_5285: (Default)
From: [identity profile] kiwiria.livejournal.com
How long time has she been running a fever now? If you think she'd like it, I'd be happy to send her a card as well. I think you have my email address somewhere, otherwise let me know.

(no subject)

Date: 2004-08-25 02:21 pm (UTC)
From: [identity profile] seeker101.livejournal.com
I am so sorry to see your little girl suffer with this. I though it was gone. Will continue to keep her in my prayers.

(no subject)

Date: 2004-08-25 02:38 pm (UTC)
From: [identity profile] holyoutlaw.livejournal.com
I'm sorry to hear about this, too, and extend you, Delia, and everyone my best wishes and prayers. And I have lots of silly postcards...

(no subject)

Date: 2004-08-25 03:05 pm (UTC)
From: [identity profile] kokopoko.livejournal.com
I'm out of ideas as to what it could be. No ear infection? I to god they find it out fast!

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