pegkerr: (Rob)
Rather to our astonishment, Rob is beginning three weeks of radiation at the Mayo Clinic this coming Monday. Everything fell into place extremely quickly.

Read the details at our CaringBridge here.
pegkerr: (A light in dark places ice candle)
We have known this information for awhile but we delayed in making it generally known so that we could notify family first. The clinical trial that Rob underwent did not work, and so he still is not cleared for stem cell transplant. We met with our oncologist to discuss our dwindling options.

Read more on Rob's CaringBridge account here.
pegkerr: (Harry felt he could have produced the wo)
Rob is home from the hospital! (And losing his hair all over again, poor guy; he looks a bit mangy but is very glad to be home), and with me, he thanks everyone for their support.

CaringBridge post here.
pegkerr: (Default)
Thanks to all who came out to help. CaringBridge post is here.

Meanwhile: Rob's donor comes to the hospital to have his NK cells removed. They will be processed overnight and then administered to Rob on Tuesday.
pegkerr: (Default)
Short CaringBridge post here, mainly to ask for help this coming Saturday afternoon reorganizing the garage. We need to reshuffle the boxes into a more useable configuration and add more boxes from Rob's de-constructed mancave. The fun starts at 1:00 p.m., and I hope that the people who said that snow starts tomorrow were only kidding. The CaringBridge post has instructions on where to email if you think you can attend. Thank you.
pegkerr: (Default)
Read the details at our CaringBridge post here.

Peg's to do list for the next several weeks before (and possibly after) Rob is out of the hospital:

•Finalize the kitchen repairs bid and pick paint colors
•Call Open Arms of Minnesota to notify them I need to cut my delivery in half since Rob is hospitalized.
•Get Rob checked into the hospital.
•Vote
•Go to work. Pay ALL the bills. Including the ones that Rob usually pays.
•Move stuff wherever possible so that the kitchen repairs can be completed. (Into the den? From one end of the kitchen to the other? Um...)
•Contact the carpet installer and have him put the new carpet into the den.
•Pay the contractors when jobs are done. Update the spreadsheet and keep track of the receipts.
•Set date and send out invitations for Garage Tetris work party.
•Reorganize the boxes in the garage so more can be added (work party).
•Take the bookcase out of the garage and use some the contractor's paint to paint it. When it's dry, it'll go into the dining room.
•Delegate some people to take certain objects out of the garage to possible new homes. Top of barbecue to scrap metal dealer. Old bicycle to nephews for parts? See if anyone can take the task to see if the ebay store in Edina would accept Rob's law library books to try to sell on eBay.
•Take boxes in Fiona's old bed room and move some to garage, and the rest to the den.
•Visit Rob in the hospital (ongoing).
•Buy a love seat for the den (We've picked one at Ikea. And no, I am not going to drive to pick it up or assemble it myself. I will PAY to have someone do that).Edited to add: shout out of thanks to my neighbor who has volunteered to pick up and assemble this once we purchase it.
•Buy a single sleeper futon for Fiona's old bed room/eventually my office (several relatives have volunteered to come from out of town for caregiving, and we have no guest room). Fiona asked me to have her come along since she had plenty of painful experience with Bad Futons and can hopefully help me avoid them.
•Finish research and buy an air purifier.
•Buy a medical alert bracelet for Rob.
•Contact my nephews and arrange time to put furniture back in the den.
•Put up the floor-to-ceiling bookcase in the den and replace all the books.
•Put up new cases for media
•Do my best to set up Rob's electronics in the den
•Move the large screen TV into the den, which is where it has belonged all along.
•Contact someone to do duct cleaning
•Steam clean the carpets upstairs
•Dust everything everywhere
•Put the garden to bed
•Figure out where family thanksgiving will be held (not my house, obviously).
•Figure out whether Rob can attend (probably won't know until that week).
•Figure out how to get Delia home from the University for Thanksgiving if I can't leave Rob alone. Perhaps she can grab a ride from someone, or perhaps she will stay there and have Thanksgiving with her uncle and aunt?
•Set up 24/7 caregiving schedule for Rob (through Christmas)?
•Christmas shopping. Probably entirely on line.
•Buy a new electric blanket (ours is old and grotty and therefore unsafe for the immune-suppressed) and new sheets (we have only one set, and they have to be cleaned/changed frequently when he comes home).
•Send out holiday cards and letter (already purchased).

It would be nice, but I'm not sure I'll get to it:
•Contracting for electrical repairs
•Contract to get an iron hand rail installed for the steps up to our house
•Buying new towels and rugs for our newly refinished bathroom
•Thank you notes
•Keep up with Alternity

Do you wonder why I've turned out all the lights tonight and am not handing out trick or treat candy?
pegkerr: (Default)
and the clinical trial is a GO. Details (and requests for help) are posted on our CaringBridge site here.
pegkerr: (Give her hell from us Peeves)
Rob has been accepted as a patient in a clinical trial which we hope will get him to the point that he'll be able to have a stem cell transplant. Read more about it at our CaringBridge here.
pegkerr: (Do I not hit near the mark?)
Rob has received good news about his siblings' genetic testing, and we have several medical appointments scheduled for next week. Read more at his CaringBrige site here.
pegkerr: (Deal with it and keep walking)
Rob went through all the various diagnostic scans this past Monday, and we went in to get the results yesterday.

They were not what we hoped to hear.

Read more at his CaringBridge account here.
pegkerr: (Deal with it and keep walking)
We met with the oncologist today. The news was disappointing, but not unexpected.

I came back to work after the appointment and spoke with one of my attorneys, who said something like, "You're being so strong about this. If it were me, I would be scarfing chocolate like crazy."

I had to laugh. "Yeah, that's what I did: I immediately went to Starbucks and bought a chocolate croissant right after the appointment."

If the schedulers manage to pull all the right strings in time, Rob will be hospitalized Monday for four days.

In other news...um...Fiona's apartment is great. And my back is much, much better.

Watching The Lizzie Bennet Diaries is a fine thing to do tonight.
pegkerr: (Deal with it and keep walking)
It's been a year now since diagnosis (geez). Athena, the head tumor is showing signs of growing back (yet again). We meet with the oncologist August 7 after several days of scans to learn the next step.

I have scheduled a request on our planner: would anyone be willing to help spare my wrenched back and help with some yardwork?

CaringBridge post here.
pegkerr: (Default)
Rob is getting an autologous stem cell transplant, and we are going to need a LOT of assistance, specifically caregiver help during the day while Peg is at work. Can you help?

Please read the latest on Rob's CaringBridge account here.

Signal boosting would also be appreciated.
pegkerr: (Default)
Rob is out of the hospital and back at work, and we are learning about what comes next.

Read more here.
pegkerr: (Default)
New CaringBridge post: The doctor saw Rob's scans last Thursday and decided he should start chemo immediately. So as of this morning, Rob is in the hospital until Wednesday night/Thursday morning.
pegkerr: (All we have to decide is what to do with)
Today's visit with the oncologist was sort of a bad news fest.

Caring Bridge Post.
pegkerr: (Constant vigilance!)
We received unexpected and unpleasant news from the doctor who removed the growth from Rob's head last week.

The next appointment to see the oncologist again has been moved up from two months from now to 8:30 a.m. this coming Tuesday. We'll learn more then.

Caringbridge post
pegkerr: (Default)
In which we thank friends for their help with yard work and report the results of Rob's most recent PET scan. See here. Fifth chemo is over, but we may not be done at six.

Profile

pegkerr: (Default)
pegkerr

May 2025

S M T W T F S
    1 23
45678 910
1112131415 1617
1819202122 2324
25262728293031

Peg Kerr, Author

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags