pegkerr: (Default)
Open Arms of Minnesota fed me and my family for four and a half years as Rob was battling cancer. This is one of the organizations to which we gave the memorials raised at his funeral. I am absolutely heartsick at this news.

And furious.

To those of you who voted for Trump because you deluded yourselves that he was gonna help with the price of eggs? Well, Open Arms of Minnesota serves 12,000 meals weekly to 1,300+ people fighting life-threatening diseases. Less than three weeks into his administration, your hero has gutted it.
“Dear Open Arms Community, I am writing to our community today with a heavy heart. Due to significant federal and state funding issues, Open Arms is facing an unprecedented financial challenge that will impact the way we serve our community.

Our organization has been informed of a drastic cut to our Ryan White funding starting this April, amounting to more than $650,000 in reductions over the next year – due to a $20 million deficit in funding at the state level. Compounding this crisis is a federal funding situation that is like nothing we have ever seen. What began as a total funding freeze ordered by the Trump administration, disrupting essential and expected payments on our existing contracts, has now created fear and uncertainty for our future. One of our current federal grants that pays for local purchasing of ingredients for meals remains frozen today. Nonprofits like Open Arms who hold federal funding relationships are being told to prepare for the worst, as Washington continues to debate the future of federal grants like the ones we receive to provide meals to our elderly and our HIV-positive clients.

These financial obstacles have forced us to take difficult and immediate steps to reduce expenses and make sure we are best positioned for long-term stability.”
Read more at the link here.
pegkerr: (I'm hoping to do some good in the world!)
Here's this week's digital collage card I made in response to the volunteer shift I did this past week at Open Arms of Minnesota (here's the post I wrote about it yesterday, to promote this non-profit for Give to the Max. Again, a wonderful organization that was a great personal help to me and my family).

My sister Betsy suggested that we volunteer to help pack Thanksgiving turkey dinners. That's the two of us together in the bottom center after our shift (which we spent packing the meals and chopping mushrooms). The figure in the turkey suit hovering above the pie is one of the preternaturally cheerful individuals out in the parking lot who was giving directions to the drivers who were coming into the parking lot to pick up the packed meals to deliver to the clients.

Volunteer

46 Volunteer

Click here to read about the 52 card project and see the year's gallery.
pegkerr: (I'm hoping to do some good in the world!)
Today's Give to the Max, and I wanted to raise awareness about a wonderful organization that was there when my family needed them the most: Open Arms of Minnesota.

This is a non-profit that fed my family every week for four and a half years, during the time that Rob was fighting cancer. It was begun in 1986 by a man by the name of Bill Rowe, who saw the need to feed people with HIV/AIDS, which is why I have donated part of the most recent royalties from my book The Wild Swans. They then broadened their scope to assist families living with other life-threatening illness, such as cancer (which is why we were eligible). They provide a truly delicious frozen dinner up to five times a week, per person, per household, made by volunteers in their pristine commercial kitchen, and a pantry bag, including baked treats. They consider it their mission to help with healing by providing healthy, nutritious, and delicious food.

Their big annual event is Thanksgiving dinner: they will either cook it for you, providing a hot meal Thanksgiving morning, or provide the fixings to cook it yourself. The works: turkey, potatoes, vegetables, gravy, cranberry sauce, pie. They provide Thanksgiving dinner to over 800 families.

My sister Betsy is the one who found the organization when we were looking for resources to help us, and she has subsequently volunteered in the Open Arms kitchen. I joined her last week to help the crews packing up Thanksgiving dinner.

Here's the Give to the Max link (they're getting a match if you donate today).

I'll have some pictures when I post my next digital collage.
pegkerr: (I need hardly add that I have rarely bee)
Today, I threw away the turkey dinner in the freezer.

We got our Thanksgiving dinner for four years from Open Arms of Minnesota, a service which offers free food to families dealing with life-threatening illness. They offer their clients a full Thanksgiving dinner each year. You can choose whether to have it delivered fully cooked or frozen so you can cook it yourself.

Rob's family, knowing he was gravely ill, had flown in from all over the country to see him. Our plan was to spend Thanksgiving dinner at his brother's and to cook the dinner Open Arms had given to us sometime later, just for Rob, me and the girls. A nice celebratory dinner for just the four of us.

But on Thanksgiving Day, Rob woke up that morning with a fever of 103. I called his brother's, hoping that at least my girls could go over there while we were in the emergency room, so they could see their grandma who had flown in from California. Nope. One out of town relative who'd flown in had a terrible cold, and we couldn't risk the girls being exposed to something they could give their daddy.

So I arranged for the girls to go spend Thanksgiving at my sister's celebration instead, and then took Rob to the Emergency Room. We spent the entire sad day in the ER, getting hungrier and hungrier (all the restaurants around the hospital were closed by the holiday), tormented by the pictures of the family gatherings and feasts that our families texted to us.

Rob was admitted to the hospital hours later. His mom and brother delivered Thanksgiving leftovers to him later that evening.

He never went home again.

That frozen turkey and pumpkin pie and all the rest of the fixings have sat in my freezer ever since. At first, when we hoped he would be home soon, we thought, "We can cook it for Christmas." When he died in January, I thought, well, I'd get around to cooking it eventually. It'll keep okay in the freezer. Even though my girls were gone, Fiona to a new apartment, and Delia back to college. Fiona said she'd take it and cook it for her roommates, but every time I asked her about it, she put me off. Too busy. About to move.

Finally, I took everything out of the freezer tonight and threw it out, because I just couldn't bear to look at it any longer. And I cried my eyes out for about a half hour. All that kindness, all that hope, all that celebration, all that tradition. Gone into the garbage, leaving just me, alone and with a broken heart behind.
pegkerr: (Default)
I talked on the phone briefly with my sister Betsy tonight, who was calling to wish us luck with Rob's first chemo treatment. I told her how overwhelmed I was feeling (I was in the middle of a shopping trip at the fourth store I'd stopped at after work, and I was nowhere done with my list). I don't feel anywhere near ready for what we're facing tomorrow; haven't finished coordinating the support team on CaringBridge, for example, and so had no volunteers lined up for meals this week--partly because we don't know how Rob will feel until we've BEEN through it, and we're not quite sure what to ask for. Fiona's getaway was a major distraction, too. Betsy suggested that maybe she could be the point person who coordinates getting us the help we need. I liked the idea, and we agreed to talk about it later this weekend.

An hour and a half later, I got a Facebook message. Betsy had started googling and found an organization, Open Arms of Minnesota, which delivers FREE medically-tailored meals to people in Minnesota who are dealing with illnesses like cancer or AIDS. Wow! I have downloaded the form, and Rob will bring it to his doctor tomorrow to get the referral.

Okay, I'm sold. Betsy, you are obviously the perfect person to be our resource/support wrangler. Thank you so much!

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