pegkerr: (Deal with it and keep walking)
I had an idea for a card that seemed to embody EVERYTHING about this week: Exhaustion.

The sleep disorder continues to be a struggle. The medication I'm taking helps me sleep better, but only sometimes and only slightly: I still have episodes of wakefulness at night, and now I'm barely half-awake during the day. I kept throwing in the towel all week with what I wanted to do. The toe has healed enough that I could finally get together with my walking mates I meet regularly, but I bailed on the after-walk coffee because I couldn't keep my eyes open. I took sick time on Tuesday because, again, I was actually dozing off at my desk.

Then there was this week's stint of heat and humidity. I have a portable air conditioner in the bedroom, but no central air. On Thursday, overwhelmed, I retreated to the bedroom and just lay on the bed and read for most of the day.

Today, the temperature is lower, but I spent the morning moving four wheelbarrows full of dirt (to re-grade my foundation) from a neighbor who lives three blocks away. Again, complete exhaustion.

But I decided not to do that card.

You know what, I'm sick of talking about my sleep disorder. It's impacting my life terribly, but I don't want to waste yet another collage on it. I don't want to be yet another aging woman who does nothing but grouse about her physical problems.

As for the heat, who wants to hear about that? We've all been feeling it.

What's more, I've been thinking this week about my own privilege. Who am I to complain?

My sister-in-law lives in Phoenix, where it has been 110 degrees for over three weeks--she finally had to get out of town and drive up north to see her mother. Millions of people all over this country are suffering even higher temperatures than we have here in Minnesota. And others are suffering temperatures yet higher still in other parts of the world.

I feel so put upon dealing with an un-air-conditioned house, but my own daughter worked this week in an un-air-conditioned warehouse, 100 degrees, with full body coverage clothing and steel-toed boots. They keep the doors propped open to let the trucks in and out, so she has to do with the smokey air, too. Is what I've had to bear anything close to that?

Or the homeless woman I gave some money to outside the co-op where I stopped earlier this week? I went into an air-conditioned place to eat my lunch, while she stayed out there, roasting in the sun.

I decided, instead, to do a card about dealing with this kind of stress and depletion.

I decided to do a card about Fortitude.

I started thinking of an essay I wrote years ago for one of the Harry Potter conferences that HPEF held. I was tracing the seven deadly sins and the seven heavenly virtues through the Harry Potter books. I'm disgusted with Rowling, so I'm not going to pull the examples from the books themselves that I used in the paper, but I'm putting some excerpts of the essay here:
Fortitude means strength, courage, endurance, and resoluteness. Some might term it “grit” or “guts.” This virtue is the first of the Seven Heavenly Virtues derived from what the Greeks termed the cardinal virtues. Note the etymology: the words “fort” and “fortify” are derived from the same Latin root, “fortis,” meaning “strong.” Like a fort, fortitude is something that shields the hero under siege. Fortitude thus is a protective virtue, both for individuals and groups. Groups survive best under siege when they cooperate....Fortitude manifests itself both in active and passive forms. Passive fortitude means bearing things (ranging from the merely vexing to the dreadful) without giving up or giving in....Passive fortitude stands against two of the greatest tools of evil: fear and despair....Fortitude’s natural ally is Hope. Passive fortitude, the ability to wait out a siege, is strongest when hope is there to sustain. Conversely, then, the strongest fortitude—and perhaps the most critical in resisting evil—is resistance which continues when all hope is gone.

The other kind of fortitude, which manifests itself actively, can be called courage. If passive fortitude is the fortress in which the hero waits out the siege, then its active manifestation, courage, is what drives the hero from the safety of the fortress to engage the enemy in the field. Fortitude stands resolute in the face of fear and despair; courage keeps moving without giving up.
I'm trying to show some fortitude. I'm trying to have some courage.

As much as I now loathe J. K. Rowling and have lost all respect for her, I am a Gryffindor, after all.

Wishing fortitude for you, too.

Image description: Bottom center: a castle with high siege walls against a brilliantly blue sky with puffy clouds. The semi-transparent head and shoulders of a visored knight rise above the castle, center left. Center right: a knight on horseback with a flying pennant raised above its head.

Fortitude

30 Fortitude

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pegkerr: (Use well the days)
This week has been sort a sort of mixed bag: the good news is that I got my foundation fixed, and I'm very happy with the results. After weeks of trying to find someone and beginning to despair that I would find anyone willing to do it before the snow fell, I got a referral to someone who was willing to come out right away and who gave me a bid with a very good price. He was able to start immediately and got it finished up within four days. Yay!

On the not-so-good side, it's been a challenging week physically. My wrist, which I've had problems with before, has been giving me some pain, and I have decided to go back to physical therapy. In an effort to lick the ongoing sleep problems, I've started with a new medication and good heavens, it's been difficult. I have been COMPLETELY exhausted, nodding off at work, and having to leave meetings early. But I'm gritting my teeth and trying to stick it out. I'm still recovering from the broken toe and so not doing my long walks, which is vexing. I've decided to resume weightlifting, because I know I need to add it to my routine, and I'm truly trying to get healthier. As a result, although I have been taking it cautiously, I have been super sore all over. Between that, the wrist, and the toe, I've been taking a lot of painkillers. As I struggle to stay awake.

As a result of all this, I've been doing everything I can to take care of myself. And trying to do what makes me happy, with, I must say, a great deal of success. The weather has been lovely, which has certainly helped. I went on a picnic by myself last Sunday at the Lake Harriet Rose Garden and on the way home, I came across a street festival and stopped for a while to watch the joyously colorful dancers in complete fascination. I've been experimenting in the kitchen and making fun recipes--it's been a great week for food values.

Today, I plan to go to an art festival. Tomorrow, I'll be going to a party for some dear friends celebrating their 40th wedding anniversary and their retirement.

I've definitely been enjoying myself, despite the pain. And I've been happy.

Peg at picnic


Image description: Center: the fountain at the Lake Harriet Rose Garden in Minneapolis. Lower center: various foods spread on a picnic blanket--cherries, cheese, a plastic cup with wine. Lower/center right: a red rose in full bloom. Lower/center left: a hand holds a small glass jar with tiramisu pudding, with chocolate shavings on top. upper right: a fantastically colorful dancer with a bearded face and tall colorful headdress. Upper, semi-transparent: three different pictures of the process of making zucchini pesto rollups: to the left, slices of zucchini topped with roasted peppers on a cutting board. Upper left, two cups of a muffin tin with the zucchini slices rolled up and topped with egg. Just below that: a plate on a flowered tray, with zucchini rollups next to a fruit bowl with berries.

Enjoyment

28 Enjoyment

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pegkerr: (Dark have been my dreams of late)
As I said in my last post, my sleep has been insufficient, and that is dragging me down in all sorts of subtle (and not-so-subtle) ways. There is nothing ostensibly wrong with my life (well, aside from the fact that I'm not working enough hours, I'm a widow who misses her husband, I'm in a new and satisfying relationship but finding a way to combine households with my person isn't easy or obvious, I feel increasingly unsafe in my neighborhood, the nature of politics in America, climate doom--you know, all the usual things).

Ordinarily, I just sort of live with these things. But with the drag of not enough sleep, it hasn't been easy, and I am feeling much more fragile than usual this week.

I'm trying not to let myself slide mentally, honest. But I have no margin to spare.

A woman (Sleeping Beauty) in a splendidly embroidered medieval dress reclines in a bed, asleep under a sunny lead-paned window. Foreground, lower left corner: the silhouette of a seated woman in profile. Overlay: a frame of broken glass.

Fragile

22 Fragile

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pegkerr: (Dark have been my dreams of late)
My sleep disorder is so horrible right now. I left two social events early this weekend because I was so exhausted I feared my safety driving home (I was drifting over the rumble strips at 10:30 in the morning. I had to stop three times to walk around on an hour and a half drive home in the afternoon, just to force myself to stay awake).

I got together with two friends for usual morning walk today but had to beg to cut the walk short--so exhausted I was staggering. And then I cried like a ninny during our after walk coffee.

Taking sick time this afternoon. Again. The only sick time I have taken in the past two years has been due to my insomnia.

I am in a fog. God, I hate this. This has been going on for, what, eight years now? I am so frustrated that I have been in tears much of the day.

I want my life back. Yes, I am doing CPAP. Yes, I am seeing an insomnia doctor. Yes, I practice sleep hygiene.

BUT I CAN'T SLEEP.
pegkerr: (Deal with it and keep walking)
My sleep disorder has been terrible lately. Perhaps it's the time change, but I have really been suffering badly this week--four or five hours a night, even though I lie in bed for eight, followed by intense headaches the next day from lack of sleep. I missed work on Monday due to one of those migraines. I feel drawn and haggard as if I am walking in a fog, ready to blunder into walls. My IQ has noticeably dropped.

I have been grappling with various issues in my life that have added to that same feeling of weary bewilderment and befuddlement. I am trying to do some travel planning, and I am woefully unpracticed at that kind of thing. I am trying to figure out some estate planning issues, which means that I finally have to muster up the spoons to figure out how to get rid of a timeshare that Rob and I bought in 2003. Timeshares, of course, are designed to be impenetrably hard to understand and get rid of. I am enlisting some help to try to deal with the issue. But that, and several other things in my life that I don't particularly want to talk about make me feel exhausted, overwhelmed, and as if I am lost in a maze.

I do want to acknowledge that I did have one wonderful thing that happened this week: Eric and I took an overnight getaway to a bed and breakfast in Red Wing--a relaxing 24 hours that was what both of us badly needed. As a result, my other alternative for this week's collage was "Getaway."

But once I had the idea for the theme of the week that I ultimately chose, I was so gripped by an inner vision of what I thought the collage should look like that it was no contest. The result, I (modestly) think, is one of the best collages I've done yet.

What do you think?

Inside a hall of mirrors, a woman (Peg) stands in multiple reflections from different angles looking in all directions. All stand with hands to the side, except for the woman closest to the foreground who has her hands over her face.

Mirrors

12 Mirrors

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pegkerr: (Is nothing safe?)
I have an exceedingly helpful little tool that I pull out every day: a USB lighter. I like to light candles every night in my living room, and instead of going through scores of matches, I slide a plastic tab on the side of the lighter, making two metal prongs stick out of the end. A push of a button causes a small arc of electricity to light up between the two prongs, which easily lights a candle wick. It can be used about 300 times to light something until you simply re-charge it with a USB port.

USB lighter
But this week, inexplicably, the plastic slide tab over the ignition switch became stuck in the closed position, and no matter what I did to try to pry it open, it remained stuck. This exceedingly useful piece of technology, something that made my life easier every day, was suddenly useless.

This week was like that.

You may have seen news stories about the LastPass breach. LastPass is a password manager, a website that supposedly was protected and encrypted. I've used it for about the past eight years to store all my passwords--you only have to remember one password, rather than several hundred.

And now it's been compromised, doubtless by criminals eager to sell the information on the dark web. The advice I read from security experts was to stop using it, find a new password service, and immediately change your most important passwords.

So after some research, I set up an account with a new password service, exported my LastPass passwords to it, and began the task. And I immediately ran into trouble.

So far I have changed four passwords. And it’s taken six hours so far of trouble-shooting. Changing my bank password immediately locked me out of the account. Tried calling and was on hold for forty minutes until I gave up and hung up. Had to resort to a chatbot to get it fixed.

Then I attempted to change three different email account passwords. I got entirely locked out of my main email account for several days, the one the bills come to. My email provider kept sending the password reset email, but mysteriously it would never arrive in the backup email inbox, even though it was registered to the account. And I still couldn’t download email on the other two accounts on my laptop. Mysteriously, even though I repeatedly walked through the steps to configure the email, my mail app on my laptop absolutely refused to connect. Apple said it was Comcast’s fault and Comcast said it was something wrong with the Apple mail app.

I’m just absolutely gobsmacked that something that should be as simple as a password reset resulted in five hours of troubleshooting with five separate customer service reps. I started to wonder whether I would ever get access to my main email account again. After having it for close to twenty years. It was maddening--the last tech seemed especially clueless, apparently unable to ascertain from his computer that I even HAD an account, when I've been a customer for decades. Unbelievable.

I eventually got so desperate that I drove to an XFinity store to talk to someone in person, because the techs over the phone or via chat seemed so buffoonishly ineffectual. Fortunately, the person I found there seemed to have a better idea of what he was doing, and I finally got back into my email account and got everything to download today.

That’s six hours of trouble-shooting on just four accounts. And I have several hundred more passwords to change.

So it's been a really stressful week. I ended up taking a sick day on Thursday--extra stress led to poor sleep, which led to a migraine headache.

I will say, despite all the heartburn and yes, all the lost sleep from worry, I've also experienced some remarkable instances of kindness this week. A neighbor shoveled my walk after the latest storm (particularly welcome after my fall last week), and several other people reached out spontaneously to offer me some very welcome and generous technological assistance. And another friend took me out for a really spectacular dinner. I'm grateful for the support during what has been a difficult couple of weeks.

(I still intend to keep titles for these individual collages to one word this year. This week I sort of cheated by using a compound word. After the week I've had, I'm crabby enough to say that if you don't like it, bite me.)

Top center: LastPass padlock, unlocked. Center, semi-transparent: the words "Deep Web" surrounded by bytes 0s and 1s. Center right: a USB lighter wand. Left: Peg on the phone, with a frustrated expression on her face. Lower left: a hand reaches to a woman, lower right, who has her hands over her face, apparently in despair.

Techno-Frustration

3 Techno-Frustration

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pegkerr: (Default)
About a month ago, I contacted my doctor to say that I've been feeling awful, and can anything be done? I have been SO exhausted. I walk with some friends around a local lake several times a week, and my stamina has been flagging badly. I used to be the pacesetter. Then I started getting exhausted halfway around the lake. Now I want to quit when I'm a third of the way around the lake. Is this still post-concussion stuff? My plant-based diet? What? I feel as though I have been living in a fog, struggling to stay awake in the evening and yet sleeping badly at night.

So, I met with my doctor, underwent a series of blood tests, and went back for a consult with my sleep doctor, too. Conclusion: yes, the sleep problems probably ARE related to the concussion--that is, concussions can cause sleep issues, and even when symptoms recede, the fact that the sleep pattern has been disordered means that sleep can continue to be screwed up even months later.

The blood tests revealed that I have a Vitamin D deficiency (very common for people in Minnesota--we have less sunlight than other parts of the country) and I'm low on Vitamin B12 (common for vegans).

So, I am back to Sleep Boot Camp (NO naps, later bedtime) and I've started Vitamin D and Vitamin B12 supplements. I hope that I will start feeling better soon. I really want my life back.

Image description: Foreground right: Peg stands hunched over, looking exhausted. A windup key emerges from her back. Behind the windup key a hand holds a Vitamin D pill up against the sun. Lower left: pink pills spell out "B12" Center left: Vitamin D.

Deficiency

28 Deficiency

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pegkerr: (candle)
The Winter Solstice has slowly been growing in importance for me over the years. It's odd: I pay very little attention to the Summer Solstice. But when you have seasonal affective disorder, the Winter Solstice (particularly in northern climes, where sunlight is scarce in winter) is a REALLY BIG DEAL. I held a Solstice party a few years ago, and were it not for the pandemic, I would have held it again this year: a quiet gathering with friends, mulled wine, and delicious food. *sigh* But I celebrated it this year in my own way.

Churches are beginning to notice this, too: a growing trend in congregations is a service before Christmas, around the Solstice, which some have dubbed "Blue Christmas." My church has always had an outreach to people suffering from mental illness, so this is right in our wheelhouse. As it happens, I have had no issues with seasonal affective disorder this year at all (thank heavens), which I attribute to good diet, regular exercise, and the fact that I have finally conquered my struggles with sleep for the first time in almost half a decade (thank you, Sleep Boot Camp). Coming into this darkest period of winter, I feel good.

Anyway, Blue Christmas. My church held a quiet, elegant, lovely service called "The Longest Night" last night. We incorporated two songs by Peter Mayer, one of my favorite singers (I introduced his music to our music director and she has taken to him as much as I have). One song was "Green," which I sang as a solo, and then the congregations joined as we segued into "Joy to the World."



The other song included in the service is one of my favorite pieces of Solstice music of all time, "The Longest Night." I incorporated some of the lyrics into this week's card.



After Pastor Sara's reflection, the small gathering wrote their prayers on slips of paper left in the manger and then came to the center of the circle to light candles.

I went home and turned off all the lights and lit candles throughout the downstairs. Lots and lots of candles. I listened to a peaceful solstice mix of music, roasted some chestnuts, and brewed myself a mug of mulled wine.

Two lit candles on a table. In front sits a large glass much with mulled wine with cranberries and oranges


Delicious. Then, utterly at peace with myself and the world, I sat down and created this card.

Solstice

51 Solstice

Just one more card and then I'm done for the year! I have had so much fun with this project and have found it to be so valuable (both in terms of creativity and in working things through for myself) that I have already decided that this project will continue next year. I will start a new gallery after the first of the year, but will include a link from the prior gallery to direct people.

Click here to read about the 52 card project and see the year's gallery.
pegkerr: (Dark have been my dreams of late)
The CPAP machine has not solved my sleep disturbances. I still wake up multiple times a night, sometimes lying awake for hours. Sometimes I conk out and fall into bed as early as 6:30 pm; other days I can't fall asleep until after 2:00 a.m. The fact that the problems have continued has been a rather crushing disappointment. I had SO hoped that going on CPAP would make the insomnia go away, but alas, it hasn't.

I finally got in for a video appointment this week with an insomnia specialist. After reviewing my sleep diary, he determined I was sleeping (with wild variations) an average of 6 1/2 hours a night. So he gave me a set time of seven hours--I am to get into bed at exactly 11:30 pm and get out of bed at exactly 6:30 a.m., in an effort to re-set my internal hormonal alarms. He warned me that this would be rather difficult at first (in fact, he dubbed the regime "Sleep Boot Camp.") But if I stick to it, it should put enough pressure on my physiology and reset my hormonal clock sufficiently that my body will actually sleep when I'm in bed. Hopefully.

Last night was the first night. I gotta say, it was really tough to stay awake until 11:30 p.m. when I was dying to get into bed at 8:30 p.m. I wonder how long it will take me to adjust.

If I hadn't decided at the beginning of the year that each collage card title should be one word, "Sleep Boot Camp" would be this week's collage title. I mulled over the problem for a while and finally hit upon the word "Reveille." That made me think of the Andrews Sisters, and their song "Boogie Woogie Bugle Boy."

Maybe having my own personal trumpeter would make it easier for me to get out of bed on the mornings that I'm groggy because I've only slept four hours.

Reveille

37 Reveille

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pegkerr: (I told no lies and of the truth all I co)
I hope you all appreciate that in the service of art and this project, I have the courage to post one of the most unflattering pictures of me ever taken.

I received my CPAP machine this week, which I have dubbed "Morpheus," i.e., the putative God of Sleep. This week's card is based on Sir William Ernest Reynolds-Stephens' painting The Arms of Morpheus:

Sir William Ernest Reynolds-Stephens in The Arms of Morpheus

My vision for this card was not quite realized: I wanted to overlay a picture of me wearing the CPAP mask over the maiden in the painting. Problems: these cards are all in portrait orientation, whereas the painting is landscape, so I could only use a portion. I don't live with anyone who could take a full-length picture of me, and I don't have a tripod with a time-release button, so I couldn't take a full-length shot myself (and my arm isn't long enough to take it as a selfie). After much experimenting and cursing, I managed to snap this (as I said, immensely unflattering) picture of me, just a headshot selfie, which meant I could only replace the head, not the entire body. Ah, well, it is what it is.

In the foreground, you see the machine itself, as well as the mask I wear with it. In my first night's report, I learned that I have an average of 8 to 9 "events" an hour throughout the night. An "event" is when I stop breathing for at least 10 seconds. Given that sleep apnea tends to be inherited, and given that my dad died in his sleep, my reaction to this is "Yikes." The machine is a complication in my life, and I feel ugly AF wearing it, but I am more certain than ever that I made the right decision to start down this road.

I am also excessively annoyed, all over again, by the American medical system. I went into the machine equipment company's office to get the machine and I had to sign a financial contract for the rental. I asked what my monthly cost would be, and the tech told me, "That is governed under a contract between the machine equipment company and your insurer which is proprietary information and I cannot tell you that. You will find out the amount when you receive your first bill."

Note the ridiculousness of requiring me to sign a financial contract without having any idea of what I am going to be charged. [Edited to add: this is an overstatement, sorry. He could tell me the flat rate without insurance. But what my insurance company will charge me, he couldn't tell me.]

Getting used to the machine is going okay, but it is challenging. Air is continually blown into my nostrils. Breathing in is easy, but breathing out is more of an effort. After a while, you start to feel as if you have an imbalance of air going in versus air going out, but if you make the mistake of opening your mouth to try to draw in a deeper breath, the pressure feels like it increases tenfold. You just have to keep your mouth shut and try to relax and let the machine do its thing.

The score and the condescendingly chipper message at the top of the card is from the online app I use to get the report every day.

Morpheus

Morpheus

Click here to read about the 52 card project and see the year's gallery.
pegkerr: (That may be an encouraging thought)
This past week was Easter. I missed Minicon terribly, but still, it's spring and crocuses are coming up in my yard, and it's Easter, and those are good things. To my joy, both of the girls managed to land appointments for their first vaccine shots this week.

As for me, I did a home sleep study last night. I will get the report in ten days. I am perversely a little worried because I slept pretty well last night--I'm afraid that if I have some kind of physical problem, it might not have shown up. But I am hopeful that they will be able to diagnose the problem (maybe sleep apnea? Maybe something else?) and I will GET AN ANSWER after four or five frickin' years of struggling with lack of sleep. And better yet--a treatment!

Note: in the Victorian language of the flowers, crocuses symbolize cheer, happiness, and a general spirit of positivity.


Hope


Hope

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pegkerr: (Dark have been my dreams of late)
I have had tremendous trouble sleeping ever since undergoing menopause, and especially since Rob's death. It has gotten so bad that I finally did a consultation with a sleep doctor over the phone. His tentative diagnosis: possible sleep apnea, and so he is putting an order in for a home sleep study. I am both hopeful that I'll finally get an answer and apprehensive that I might get stuck wearing a CPAP machine mask. I know sleep apnea is not something to ignore, but still...yeesh.

Doing this card was very quick: I layered it digitally, starting with a Fitbit sleep report. Over that I layered a bitmoji cartoon of me--the one I send to Eric at night when I want to let him know, "Sorry, too tired to talk tonight." I did a semi-transparent overlay over that with another Fitbit sleep report, showing my going to sleep and waking up times over the past week.

Insomnia

Insomnia

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pegkerr: (Default)
I may have mentioned that I've been having trouble with sleep, ever since I stopped some medication. I'm trying out a really cool app for my new iPod Touch: Sleep Cycle. Place the iPod Touch (or iPhone) on your bed, and it measures your movements, calculating when you are in deep sleep versus REM sleep, and it'll wake you up at the lightest point of your sleep cycle so that you will feel the most refreshed. It needs five nights of data to start analyzing your sleep in depth, but just one night of use is impressive. Here is my sleep graph, showing that I woke up at 3:00 a.m.:


sleep

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